Sunday 26th January will be a special parish day of awareness and fundraising for DEBRA Ireland. EB (epidermolysis bullosa) is a condition that affects the body’s largest organ, the skin. People living with EB are missing the essential proteins that bind the skin’s layers together, so any minor friction, movement or trauma causes it to break and blister. It’s debilitating. Excruciating. Relentless. A disease with no known cure.